Zero. I got some books, and the smiles I got from him he was happy, she said. Richard Engel announced the death of his 6-year-old son Henry after his years-long battle with Rett Syndrome, a rare genetic neurological disorder. According to Zoghbi, Henry left a lasting impression on the entire Duncan NRI team and their ongoing Rett research. (Nathan Congleton/NBCU Photo Bank/NBCUniversal via Getty Images), Fox News Flash top headlines for August 18. He had the softest blue eyes, an easy smile and a. Richard Engel Announces Death of 'Beloved' 6-Year-Old Son Henry - People In the touching video Engel shared, his son Theo, who will turn 3 in August, gives Henry kisses as he lies in bed. While describing the challenges Henry was facing, the journalist emphasized how lucky he felt to have Henry in his life. He just will smile and light up your day.. Our Rett syndrome research will continue to push as hard as possible to develop treatments. NBC News chief foreign correspondent Richard Engel announced Thursday that his son Henry, 6, has died. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo, he shared. To support the research: https://t.co/M8LV8SHv6r pic.twitter.com/UNnDONMtR1. Studying [Henrys] cells helped us to think a little differently, to find yet one more approach for developing therapies for Rett, she said. This is how we will honor his life, the doctor continued. He must have recognized everybody was celebrating him and everybodys excited about it. We've received your submission. 13,615, This story has been shared 13,572 times. ", "We have a vendetta against the syndrome and we want to cure it," Forrest said about the disease. He had the softest blue eyes, an easy smile and a contagious giggle. "Our beloved son Henry. NBC News chief foreign correspondent Richard Engel and his wife Mary Forrest welcomed their second child, a baby boy, over the weekend. RELATED: What is Rett syndrome? [14] He first lived in a ramshackle seven-story walk-up, learned Egyptian Arabic and worked as a freelance reporter in Cairo for four years. In the later essay, Engel shared that he "finally got a 'Dada'" from his son. Richard's age is 48.He has short brown hair and brown eyes, his height is 6ft (1.85m) and he weighs around 175lbs (80kgs). ", RELATED VIDEO: Richard Engel Announces Death of 'Beloved' 6-Year-Old Son Henry. The Engels got in touch with Zoghbi, whos been researching the disease for many years. Richard Engel Bio, NBC, Age, Height, Family, Wife, Salary, Net Worth The Duncan NRI's Founding Director Dr. Huda Zoghbi studied Henry's mutation closely. [77][78] Henry Engel was born with Rett syndrome, a genetic disorder that is extremely rare in males; he died in August 2022 at age 6. Through a genetic test, doctors learned he had a mutation to his MECP2 gene. Do Not Sell My Personal Information, Click to share on Facebook (Opens in new window), Click to share on Twitter (Opens in new window), Click to email a link to a friend (Opens in new window), Taylor Swift's Atlanta ticket prices are dropping big time. It was a special time.. ", Our beloved son Henry passed away. Its something we never saw with Henry. She also shared the link to donate to support research in Henry's memory. Engel grew up on the Upper East Side of Manhattan, New York City. Richard Engel shares difficulty of watching baby son 'pass' by older In 2012, he was awarded the Alfred I. du-Pont-Columbia Award for his outstanding breaking news coverage of the uprisings. And now Henry is a big brother, too.". Nope, none. Georgia Slater is a writer/reporter on the Parents team at PEOPLE. Were so close. Engel shared the heartbreaking news on Twitter last August. On August 18, 2022, he tweeted, "Our beloved son Henry passed away. ", In another tweet on Thursday, Engel said: "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. RELATED: Doctor of Richard Engels late son Henry reflects on time with him: He has this smile. We always surrounded him with love and he returned it, and so much more. Engel also talked about his wife and son's strength. 12,221, This story has been shared 9,366 times. Market data provided by Factset. In 2018, Engel recalled the shock of learning that his son will likely never be able to perform tasks such as walking or dressing himself. He was born in the United States on September 16, 1973, in New York City. Now that he's getting bigger, he can barely move independently.". Check out what's clicking on Foxnews.com. At the time, he added that Henry was "now home and getting love from brother Theo" after being hospitalized for six weeks. Born in September 2015 . Born in 2015, Henry began to miss important developmental milestones and their doctor later informed them after a genetic scan that he had the disorder due to a mutation in his MECEP2 gene. On Thursday, the couple visited TODAY and opened up about their late son, his disease and the new balcony dedicated to his memory at the hospital where he was treated in Houston, Texas. That would be [Henrys] legacy.. All rights reserved. "Life has twists, turns and new beginnings,'' Engel wrote. [46][47], Engel traveled into Syria repeatedly with rebel militias and the Free Syrian Army. Richard Engel, NBC News' chief foreign correspondent, shared sad news Thursday that his 6-year-old son Henry has died. Engel shared an update on Henry's health in May, noting that his condition had "progressed" and he had "taken a turn for the worse.". The news of Henrys passing came just months after Engel revealed his sons health had taken a turn for the worse., For everyone following Henrys story, unfortunately, hes taken a turn for the worse, the NBC News correspondenttweeted back in June. And with a smile. 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This disorder, which has no cure, causes a progressive loss of motor skills and language. However, his son Henry suffers from a devastating diagnosis of Rett Syndrome. [53], Engel was married to a fellow Stanford student; the couple divorced in 2005. NBC News chief foreign correspondent Richard Engel has shared some sad news about the health of his 6-year-old son, Henry. Engel wrote A Fist in the Hornet's Nest, published in 2004, about his experience covering the Iraq War from Baghdad. For the age expectancy of people living with Rett . We always surrounded him with love and he returned it, and so much more," Engel wrote alongside a sweet photo of his son. Do Not Sell My Personal Information, Click to share on Facebook (Opens in new window), Click to share on Twitter (Opens in new window), Click to email a link to a friend (Opens in new window). Engel, 45, announced the news Monday on the Today show,. We will continue to push as hard as possible to develop treatments. The interview also focused on Iran's empowerment as a result of the war in Iraq and how to counteract Iran's influence in the region. Thats the nature of this disease.. NBC News chief foreign correspondent Richard Engel announced Thursday that his son Henry, 6, has died. There is no cure for the condition, and people with Rett syndrome need care to treat their symptoms. [48][49], On December 13, 2012, Engel and his five crew members, Aziz Akyava, Ghazi Balkiz, John Kooistra, Ian Rivers and Ammar Cheikh Omar, were abducted in Syria. It was fun. She believes Henrys cells could be the key to finding a cure for the illness, which causes severe impairments, affecting nearly every aspect of the childs life: their ability to speak, walk, eat, and even breathe easily,according to the International Rett Syndrome Foundation. Youre my heroes," she wrote. Mutual Fund and ETF data provided by Refinitiv Lipper. Its not just delay. ', Sharon Stone Shares Tribute to Her Late Brother 2 Months After His Death: 'Thinking of My Bro', How Bruce Willis' Diagnosis of Frontotemporal Dementia Differs from Alzheimer's Disease, What Is Frontotemporal Dementia? The TODAY regular shared a link to a memorial page on the Texas Children's Hospital website, which offered more details on Henry's life and his battle with Rett syndrome, a genetic brain disorder without a treatment or cure. Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder. NBC News chief foreign correspondent Richard Engel has shared some sad news about the health of his 6-year-old son, Henry. in international relations. "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness.". I care about all of them.. MECP2 is found on the X chromosome,according to the National Institutes of Health, which females have two of, so its even rarer and more severe in males because they only have one X chromosome, explained Zoghbi. Quotes displayed in real-time or delayed by at least 15 minutes. Many of the people who work in the lab were also devastated by Henrys passing, but they were quick to tell Zoghbi, Were going to continue to work. We always surrounded him with love and he returned it, and so much more. [31] He spent years covering what he often describes as one of the most important stories of his generation, the Iraq War. Never miss a story sign up for PEOPLE's free daily newsletter to stay up-to-date on the best of what PEOPLE has to offer, from celebrity news to compelling human interest stories. Quotes displayed in real-time or delayed by at least 15 minutes. "He was in the hospital for 6 weeks, but is now home and getting love from brother Theo. For everyone following Henrys story, unfortunately hes taken a turn for the worse, Engel wrote on Twitter. Engel has shared updates on Henry over the years, writing essays in 2018 and 2019 about both the joys and heartbreaks the family experienced. [38][39][40] He often traveled to the Korengal Valley, otherwise known as the "valley of death", one of the most dangerous outposts in Afghanistan. Richard Engel is trying to find the good on a very sad day. Hoda Kotb, Savannah Guthrie brought to tears as NBC's Richard Engel and Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On. Richard Engel NBC News, Bio, Wiki, Age, Wife, On Assignment, Salary / CBS News. ", "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness," he shared. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo.. Mary and Richard," Engel wrote on Twitter. "For everyone following Henry's story, unfortunately he's taken a. Dr. Huda Zoghbi shared a tribute to Henry at the donor site, having studied his mutation and worked with him at the Texas hospital's Duncan Neurological Research Institute. 2022, NY Press Club Awards, Documentary National TV & Feature Reporting National TV. Many of Engels colleagues, including Hoda Kotb and Savannah Guthrie, honored the young boys sweet spirit following his tragic death. 13,615, This story has been shared 13,572 times. In a video that Engel shared on Twitter, his son Theo, 2, affectionately kissed Henry on the forehead as Henry lay in bed. [42], Engel reported extensively on the Arab Spring movement. Engel linked to the memorial page in a follow-up post, writing, "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease.". "For everyone following Henry's story, unfortunately he's taken a. He had the softest blue eyes, an easy smile and a. Most Facebook users can now claim settlement money. We gather on our bed several times a day for what we call 'cuddle parties,' where we kiss him, rub him, praise him (he loves to hear his name and be praised) and curl his thick, gorgeous hair in our fingers," he wrote at the time. He was 6 years old. Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome. [citation needed] Having escaped after five days in captivity, Engel said he believed that a Shabiha group loyal to al-Assad was behind the abduction, and that the crew was freed by the Ahrar al-Sham group five days later. This week in Houston, at the Duncan Neurological Research Institute they celebrated him, dedicating a balcony in his honor," shared the journalist, 49. He doesn't sit up straight. His quiet fight against this terrible disease was incredible. [28] Engel covered all major milestones of the war, including the first free Iraqi election and the capture, trial, and execution of Saddam Hussein. . 2022, Telly Award Winner - Gold - On Assignment with Richard Engel, "Afghanistan: Graveyard of the Empires", This page was last edited on 28 April 2023, at 19:17. [5][6] His father, Peter, a former Goldman Sachs financier, and mother Nina, who ran an antiques store, feared for their son's future prospects because of his dyslexia. [17], In 2009, Engel was stationed in Kabul, Afghanistan, covering the country's August presidential election. Currently, there isnt one, and treatment addresses symptoms of the syndrome, not its cause, according to NIH. This story has been shared 13,615 times. Privacy Notice Engel also opened up about the feeling of watching his younger son surpass Henry in developmental milestones. Georgia Slater. Tributes and condolences poured in for Engel on Twitter after he shared the heartbreaking news. What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder. For an optimal experience visit our site on another browser. In June, Engel said Henry had taken a turn for the worse, developing dystonia, characterized by shaking and stiffness. It is more often found in girls and there is no cure. Richard Engel (born September 16, 1973) is an American journalist and author who is the chief foreign correspondent for NBC News. All rights reserved. Hoda Kotb and Savannah Guthrie reunited with NBC's Richard Engel and his wife Mary on Today, eight months after the death of their six-year-old boy. [38][39][40], Engel reported on Firebase Restrepo and the soldiers of Viper Company stationed in the Korengal where he showed the fierce firefights taking place between U.S. soldiers and Taliban forces. The journalist first shared in 2017 that Henry was diagnosed with Rett syndrome and in 2020 explained how the coronavirus lockdown had worsened his condition, which left him unable to walk or talk because he was not able to attend school. And Henry could still help Zoghbi give these patients and their families what theyve been waiting for. 12,221, This story has been shared 9,366 times. To parents with typically developing children, a little Dada may not seem like a big deal. TODAY remembers Richard Engels beloved 6-year-old son, Henry, According to the National Institute of Neurological Disorders and Stroke. His condition progressed and hes developed dystonia: uncontrolled shaking/ stiffness., Engel continued, He was in the hospital for 6 weeks, but is now home and getting love from brother Theo., According to the Mayo Clinic, dystonia is a movement disorder in which your muscles contract involuntarily, causing repetitive or twisting movements.. He explains the conflict as occurring in six stages, or as six separate wars: Engel received a request from the Bush administration to meet with President George W. Bush at the White House to discuss Iraq and Mideast policy. The NBC News chief foreign correspondent said his son, who has a rare genetic disorder, has "taken a turn for the worse. "But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us.". It was an exciting Labor Day at Richard Engel's house. Henry was first diagnosed with Rett Syndrome, a rare genetic neurological disorder that leads to severe physical and cognitive impairments and has no cure, as of yet, in 2017. Richard Engel's son died of Rett syndrome. His cells may help find a Engel announced the death of Henry in August after his years-long battle with Rett Syndrome, a rare genetic neurological disorder. This is how we will honor Henrys life, Zoghbi said at a recent event honoring Henry at the Duncan Neurological Research Institute at Texas Childrens Hospital in Houston, where she serves as director. 9,366, 2023 NYP Holdings, Inc. All Rights Reserved Richard Engel Biography. Arkansas woman indicted for selling stolen body parts to Pennsylvania man. He will always be with us, even now hes hard at work to help other children whose lives are more difficult than they should be, the NBC News chief foreign correspondent said on TODAY. TODAY's Savannah Guthrie shared her condolences with Engel and his wife, Mary. He had the softest blue eyes, an easy smile and a contagious giggle. ", Richard Engel Honors Late Son Henry on His 7th Birthday, Gives 'Big Thank You' for Support, Richard Engel's Wife Mary Pens Essay About 6-Year-Old Son Henry's Death: 'One Last Goodbye', Hoda Kotb Gets Emotional as She Shares Tribute After 'Heartbreaking' Death of Richard Engel's Son, Richard Engel Announces Death of 'Beloved' 6-Year-Old Son Henry, Everything Richard Engel Said About 'Beloved' Son's Journey with Rett Syndrome Before His Death, Savannah Guthrie Posts Beautiful Tribute to Richard Engel and Wife Mary After Son Henry's Death, Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder, Richard Engel Celebrates Son's 5th Birthday, Shares Message to All Kids with Rett Condition, Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome, Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On, Gilbert Gottfried's Widow Dara Remembers Late Comedian, 1 Year After His Death (Exclusive), 6-Year-Old Enjoys Fundraiser for Her Rare Disease: I Wore 'a Unicorn Onesie and Butterfly Wings! 9,366, 2023 NYP Holdings, Inc. All Rights Reserved Richard Engel Gives Update on Son Henry amid Coronavirus Pandemic - People [25] Engel's latest documentary, Ukraine: Freedom or Death [26] aired on April 22, 2022 and covered the first two months of the 2022 Russian invasion of Ukraine. "MECP2 mutations cause Rett syndrome, a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties," the Texas Children's Hospital page explains. He had a tremor. His son Henry suffered from a devastating diagnosis of Rett Syndrome. The condition also led to dystonia, an uncontrolled shaking/stiffness. NBC's Richard Engel shares update on son with special needs - Today [3] He speaks and reads Arabic fluently and is fluent in Italian and Spanish. And you see him how hes struggling to really do the best he can so he can move, so he can gain some strength to crawl or do something., You feel the pain of Rett syndrome, and I felt that pain with so many patients before him, she continued. After sequencing was performed on Henry, it was discovered that he had a mutation to the gene involved in Rett syndrome.
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